Having a child with Down syndrome could be physically and emotionally challenging to the effected family members. The impact on a family can be multifaceted that can alter the total family system. The initial response of most parents to the realization that their newborn child is not perfectly formed is shock, followed by denial and grief. It was found that mothers who have babies with Down syndrome were prone to depression, mood lability and tendency to feel tired all the time as compared to mothers with normal babies.
Rarely, fathers talked about initial trauma they experienced following the diagnosis of Down syndrome. However, their greatest concern is the long-term provision for their children.
As such, parents of babies with Down syndrome need support and first information on how to raise a child with Down syndrome.
This workshop serves as a platform for participants to understand the issues and concerns of parents of babies with Down syndrome, what the parents hoped to hear or receive from the people around them, resources available to help them and ways to support them throughout the journey of raising a child with Down syndrome.
Liputan Sesi / Session Coverage
